Informed consent for genetic research on blood stored for more than a decade: a population based study.
نویسندگان
چکیده
1 Collinge J. Variant Creutzfeldt-Jakob disease. Lancet 1999;354:317-23. 2 Schreuder BEC, van Keulen LJM, Vromans MEW, Langeveld JPM, Smits MA. Preclinical test for prion diseases. Nature 1996;381:563. 3 Hill AF, Butterworth RJ, Joiner S, Jackson G, Rosser MN, Thomas DJ, et al. Investigation of variant Creutzfeldt-Jakob disease and other human prion disease with tonsil biopsy samples. Lancet 1999;353:183-9. 4 Hilton DA, Fathers E, Edwards P, Ironside JW, Zajicek J. Prion immunoreactivity in appendix before clinical onset of variant Creutzfeldt-Jakob disease. Lancet 1998;352:703-4. 5 O’Rourke KI, Baszler TV, Besser TE, Miller JM, Cutlip RC, Wells GAH, et al. Preclinical diagnosis of scrapie by immunohistochemistry of third eyelid lymphoid tissue. J Clin Microbiol 2000;38:3254-9. (Accepted 30 July 2002)
منابع مشابه
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In Vasterbotten County in northern Sweden a start-up biotech company has recently gained all commercial rights to one of the worlds largest population based research biobanks. The biobank and the company have publicly emphasized that all donors have given their informed consent to participate, but within the academy it has become debated whether people have been adequately informed. Based on an...
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BACKGROUND During the past decade, the use of stored tissue has become an object of increased ethical query. A Swedish biobank and a biotech company have been praised for solving the ethical problems with explicit informed consent procedures, and we decided to investigate donors' perceptions of the system. METHODS A questionnaire was sent to a randomized sample of 1200 donors who had donated ...
متن کاملInformed consent, participation in, and withdrawal from a population based cohort study involving genetic analysis.
OBJECTIVE Population based cohort studies involving genetic research have been initiated in several countries. However, research published to date provides little information on the willingness of the general population to participate in such studies. Furthermore, there is a need to discover the optimal methods for acquiring fully informed consent from the general population. We therefore exami...
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ورودعنوان ژورنال:
- BMJ
دوره 325 7365 شماره
صفحات -
تاریخ انتشار 2002